A neuromuscular respiratory outpatient clinic: Patient profile and experience (Beaumont Hospital)

Background Neuromuscular disorders (NMD) such as Duchenne Muscular Dystrophy (DMD) are characterised by slow progressive muscle atrophy and weakness [1]. Weak respiratory muscles, loss of ambulation and mechanical factors, cause a reduction in total lung capacity (TLC) and Vital Capacity (VC). Patients are at risk of developing acute conditions that decrease pulmonary function and in turn trigger acute respiratory failure [2]. Due to advancements in respiratory interventions NMD patients are progressing into an adulthood healthcare setting, there is a need for intervention in this phase of transition [1]. Currently in Ireland, children with NMD are diagnosed in a paediatric setting and transition to adult services without a designated medical consultant. In January 2012 a multidisciplinary Neuromuscular Respiratory Clinic was established in Beaumont Hospital. This is the first clinic of its kind in an adult setting in Ireland.